NaNoWriMo 2017 for Rochdale and District Mind

 

MIND_Rochdale-and-District_Stack-1504016273-900x600 nano_feature

 

As November closely approaches, we are also getting geared up to dive in to the madness that is National Novel Writing Month (NaNoWriMo) – a major annual event which sees published author’s and aspiring writers amongst us preparing to face the challenge of undertaking 50,000 words during the course of November.

That’s averaging 1,667 words per day, and provides 100% commitment from the participant to meet that target.

To give you a vague idea of the amount of work 50k is, that’s pretty much just over the word count of F. Scott Fitzgerald’s The Great Gatsby… (47,097!)

This year, I have geared myself up for my first ever NaNoWriMo challenge, and took the sensible advice to start prepping early. To say I started three months ago, it certainly has come around quickly!

Whilst taking this challenge, I also thought it a great opportunity to do some fundraising for a charity that is very close to my heart.

Rochdale and District Mind is a local mental health and wellbeing organisation who primarily relay on donations and sponsorships to keep the Charity afloat. The volunteers work tirelessly to support and assist in recovery for those in need – myself being one of those seeking help when I turned 18.

Mind was the first services that I braved to access on my own. At the time, I was severely struggling with depression, cripplingly low self esteem, bouts of mania, self-harm and addiction after suffering in silence from my early teens. This pathway ultimately lead me on the right pathway to get my diagnosis of Bipolar disorder – from which I received the treatment I needed to get back on my feet, go back to university and raise my beautiful young daughter.

As of many people who I have to be thankful for, the kindness and the efforts of the service workers at Rochdale Mind saved my life.

As much as I feel I can’t give enough back, this is my way of saying thank you. For my NaNoWriMo project 2017, I will be undertaking my first fiction project, a novel, which focusses on the realities of mental health.

Please help support Rochdale and District Mind (and also encourage me in my word count!) by visiting my just giving page below and giving a small donation.

 

DONATE HERE!

 

I’d also love to hear from those who are taking part with NaNo this year!

 

Thank you!

 

To find more about the incredible services and support that Rochdale Mind do please visit their website: https://www.rochdalemind.org.uk/

Advertisements

Growing up with an abusive parent – A Conversation with Claire.

CLAIRE CONVERSATION TMY

 

This month, I had the opportunity to sit down with Claire* who bravely opened up to tell me her story of how she grew up in a domestically and emotionally challenged environment, and the impact this had on her mental health as an adult. Claire is now a parent and a homeowner with her long term Partner, and when she’s not caring for her two children she works part time as a registered medical professional. This is Claire’s story of her experience with an abusive parent.

*WARNING – this post contains some reference of domestic and sexual violence, and some contents can be triggering. All names have been changed to ensure confidentiality. 

 

 

TMY – “So what made you want to speak out?

 

CLAIRE – Mostly to help your blog, and to touch on subjects that I don’t really speak about which could help other young adults or children. Um… about – it’s really hard to say it now – if you are having a tough time at home when you are young but you don’t see it as abuse or anything… But when you get old you know it is, do you know what I mean?

 

Yeah.

 

And how it can affect you a little bit really.

 

So tell me about the background of it all, obviously I know quite a bit about the life you had with your mum?

 

Even now I’ll try and discuss it, and I still won’t see it as abuse. But now when I think about it with my children, and if I was ever to do something like that, I wouldn’t do it – you know what I mean – so I know it’s wrong. But even discussing it I’ll think – ‘No, it’s not really, it’s not’ – but then again it was. So I’ll think about the way my mum used to speak to me… see even now I think people will just think it’s attention seeking or you are just being stupid, but that’s just my mum talking.

 

Yes.

 

Do you see what I mean?

 

*Nods*

Yes. I think when you are that age as well you just don’t know, you haven’t got the experience to compare it to. You haven’t got that self-worth built up over the years.

 

No, I remember when I was at school and I went to one of the mentors who helps students, and I really wanted to tell her what had been going on, and I approached her and she said to me, ‘Someone’s mum died today’, and then just blanked me so I never spoke out to anyone again after that. So I do think it’s quite important for children to be able to approach people and mentors who are supposed to be there to help you. And actually get acknowledged and not brushed off, because that actually reinforces you saying well, maybe it is nothing? If she’s not going to listen to me who is? Maybe it is nothing, maybe it is just in my head.

 

It’s quite a big deal for someone to – how old was you at the time?

 

So… I think I was in year 8 when that happened…

 

So 13, 14 maybe?

 

*Nods*

 

And that was the first time I actually went to approach somebody about it and it was the last time I ever did.

 

Yeah.

 

I suppose things might have been a little bit different if I’d actually said; look this is what’s happening at home, I’m not very happy.

 

It’s a big thing to do, was it just… built up? What made you want to talk to somebody?

 

I can’t remember to be honest I just remember thinking I need to tell someone, and then I never did again.

 

And to face that kind of rejection as well at such a young age, it must have made you feel like…

 

It’s something that has always stayed with me, what happened, it’s not something I will ever forget.

 

Yeah. Do you remember the next time you spoke out after that, when you told somebody?

 

I think it was….. I think it was when I had had my proper fall out with my mum, and I went to the doctors with panic attacks – I couldn’t breathe – and like, I kind of spoke about it but not really. I can’t remember really? I think I have obviously spoke about it to my friends as I got older, but at the time it was normalised, you sort of get desensitised to things you know like, you don’t see it as… maybe when I went to councillor really, but that was when I was about… I was pregnant with my son, so, about 13 years later. And that’s when I really opened up to a stranger about wanting to seek help again, so that’s probably about 12, 13 years later.

 

It’s a long time.

 

Yeah. Oh and I did at university actually, I had this lady called S that I used to speak to. And I wrote a massive long letter about all the things my mum had done and she like took me under her wing a little bit. Um… yeah, it affected me whilst I was at university; I used to self-harm, I tried committing suicide. I had to stay in observations with the nurse for a couple of nights, I wasn’t allowed to be on my own. I had to sleep there before they were worried I was going to kill myself. I think that’s when I wrote the letter to this women who tried to help students.

 

Trying to reach out?

 

Yeah, yeah. I’m a little bit all over the place, sorry.

 

It’s okay. Do you think that…you said you was pregnant with your son at the time when you really started opening up… Do you think that being pregnant with your first born kind of helped to see your own worth in a way?

 

No, I sought help because I didn’t want to feel that pain anymore, and bringing a child in to it.

 

Okay.

 

I was so… I think it highlighted things more because my mum would, we’d obviously had that fall out, and she wasn’t bothered with my – you know with me being pregnant or anything – and I think it just hit home just how hurt I was still and that’s when I sought counselling, I didn’t want to bring a child in to it. Well, since having children it’s got better, but I still feel feelings of guilt towards my mum, I still feel like sometimes in my head… was it acceptable behaviour? And I’m just… You know… But I wouldn’t do the things she has done to me to my children, you know then it’s wrong, you know?

 

Yeah, I suppose you’ve got something to compare it to now, you are on the different perspective, you are on your mum’s perspective in a way.

 

Yeah. Because I think really, it would be nice for people to read this, and acknowledge that there are similarities in their stories, where they have got a narcissistic mum, that they are getting abused and that it’s okay to stand up – and if they are in the situation like, with the woman at the school who didn’t acknowledge it and brushed it off, because she’d heard that something more important had happened to someone else – there are other people who you can speak to, you don’t have to just walk away and then try and find help 13 years later because you wouldn’t have to go through all that suffering.

 

Do you think your life would have been different if she did say, ‘Okay, let’s sit down and talk?’

 

I think I would have been under the eyes of social services. But my mum was under social services with my younger brother. I’m not really sure of the story behind that, I know she had a social worker to take him out, but I don’t know we never spoke about it, so I don’t know what that was all about. But because that had happened, maybe… Well, if I had gone in to more detail, gone in to any detail what had happened, I think she would have spoke to various agencies to try and take me away.

 

When did it all start with you mum? Can you remember?

 

I don’t know if this is a memory… or it’s something she had told me. But she left alcohol out in the living room when I was about 2 or 3. I got really drunk and passed out, then I got bit by a dog. And I don’t know where she was then, and I find that quite neglectful because you don’t, like –

 

It’s very young.

 

– ‘Where are you?’ You know. But, um… I do have a memory of her pushing me down the stairs when I was 4. And I have another memory… the one memory I remember really well is, I was – I can’t remember why she was angry at me – but I was in primary school and I must have been about 5 (I started school when I was 5), and she was really annoyed with me, I can’t remember why. And she pushed me. We had this sofa where it had all these little metal studs going all around it, she ended up blacking my eye? And she told me I had to tell people that I had fallen over my toys. Um, and I remember that, and pushing me down the stairs, but I can’t remember anything else after that. So I think… what I can remember… I think she was neglectful from me being a toddler, because why else would a two year old get drunk and get attacked by a dog?

 

Yeah.

 

But my first memories are more when I was about 5, um… yeah.

 

Did you feel like it was normal, growing up in that environment? Or did you know something was wrong?

 

I used to watch films and I would see like, these families being really happy, and I used to think, ‘Why is my family not like that, you know why are we not like that?’ and I used to say that to her and she’d be like, ‘Oh it’s just in the films, it’s just films.’ I just saw it as normal I think though really, I used to see the films and think why is my family not like that. But… yeah I saw it as normal really. I think it was as I grew in to an adult where I thought, you know, it’s not right, it’s not right.

 

Yeah. Did you tell your friends?

 

I can’t remember. I don’t know if they witnessed it or… I know one of my friends said that ‘I know your mum is always a bit funny with you.’ I don’t think I told my friends at the time actually, what was going on. They must have known something because when I was about 15, I lived with my friend and her mum for a while, and her mum used to say to my nan, ‘Oh I used to have her all the time as a toddler,’ and my nan was like ‘Well I used to have her all the time as well,’ so when did my mum actually have me? My mum had me quite young, and I think she felt she had missed out on a lot of her teenage years where you are going out and getting drunk and all that, so I think she wanted to experience those that everyone else was feeling? And I think she took it out on me. Quite a lot. Blamed me.

 

Do you know if she had a history of any abuse, anything similar?

 

No, she was doted on by my grandad, absolutely doted on and the problem with my mum and how she is, is that my grandad doted on her, and gave her anything she wanted, but he was a strict parent. But my nan used to hide things from my grandad too so she wouldn’t get in to trouble, and I think she has always get away with stuff and walk all over her mum because my nan wouldn’t say anything. Like my mum used to come home drunk and my nan would make cover stories up for her, you know… so. But I don’t think she was abused. She once said in anger that my dad had raped her, but I think she just said that because she’s just…

 

*Silence*

 

Yeah.

 

*Silence*

 

There are some stories about my dad and how he’d pushed her down the stairs when she was pregnant, and that he’d held her face to dog shit, but I don’t know how real these stories are because she, with my mum, you never know what to believe. She tells so many lies, it’s like the boy who cried wolf, you don’t know if it’s true or if it’s not true. So you just doubt everything she says.

 

How was the relationship between you mum and your little brother? Was it different to the relationship that you had?

 

Yeah. Um, my mum hated… So my Mum used to buy all my brothers clothes and stuff, she wouldn’t buy me any, so my nan would get them for me, my mum hated that. And my mum was very all for my brother, my brother was a little turd when he was younger sometimes… But my mum was quite nasty with him growing up though, I just remember little things, you know? And I’d think ‘It’s a bit mean that’, but… not half as much as she was like with me. They were quite close.

 

When you had your first born, was anything like, brought out of you?

 

Yeah so, some of the mental health things that I experienced was, when I was with my son, and one of the other reasons why I tried to sought counselling was that I was getting nightmares of my mum. Um, every night really, waking up screaming and stuff… and even though my mum had been abusive like, I still wanted her, I still wanted her in my life and I wanted her to care for me, and I still want her to care for me but she’s never going to be that person so you’ve kind of accept and acknowledge the fact that she’s never going to be the person that I want her to be… and a lot of anger and resentment came out for her really as well when I had my son because I thought how could you do that? How could you treat your daughter that way, like I could never be like that with my children, you know? Um… Yeah. But… There’s a lot of things though that I think ‘I could write a book about my life’ and there’s a lot of things I find it hard to talk about.

 

Does your partner know about what you have been through?

 

He knows everything, I think he knows everything really? Most things yeah.

 

I bet it feels nice to have someone who you can share your life with in that way?

 

He doesn’t… he hates her with a passion.

 

*Nods*

 

But… He gets so angry when I’m upset about her, because he hates what I have been through… where it can come to the point where he’s not really supportive and he’s just angry at her? And sometimes, like, I mean I’m not really like it anymore because of my medication but when I used to get really down… he didn’t get it? He just didn’t get it, because he has never experienced any bad things in his life, everything is perfect and rosy and he doesn’t really understand that anyone can ever suffer in pain or anything, and feel down.

 

Do you get depressed? Do you have bouts of depression?

 

*Nods*

 

Not at the minute though, because of my tablets, they really help. If I was to come off my tablets tomorrow, I’d say in a few months’ time I would be back down there feeling anxious, feeling paranoid that everyone is out to get me, like nobody likes me, I’ll get a funny look off someone and I’ll think, ‘Oh they are talking about me!’ I feel devalued, I feel below everyone, I don’t feel like I’m… I feel like everyone up here? *Raised hand above head.*

 

But I’m down here… *lowers hand.*

 

I don’t feel like my worth is…. Everyone else’s standard…

 

*Chokes up*

 

*Silence.*

 

Um… I’ll look at myself in the mirror and think – ‘You’re ugly, you are so fucking ugly!’ Um… and I’ll… I’ll just have really bad… Yeah… and, but… I’m on the tablets and I’m a lot happier, I try to avoid thinking about my mum now, but I do question my own parenting, I get paranoid that I’m not a good parent? And I feel like I’m letting my children down, but I try so hard. I think I overcompensate, but I just, I just want to be everything that my mum’s not. Um, but yeah without the tablets, I would be very down I think.

 

How long have you been on them for?

 

Um…

 

*thinks back*

 

About 2 years… yeah.

 

And who’s decision was it to be on them, was it your doctor’s?

 

That was mine. That was mine.

 

And was you in counselling before that?

 

I think I started with CBT…

 

Yep.

 

But that was before, that, I think it was before I was pregnant. But I didn’t like that, I didn’t like the female therapist, I thought she was young and I would have wanted someone a bit older and I’m my eyes a bit more experienced and someone who could actually listen to me, I felt like I was talking to someone my own age who was being judgemental of me, so I didn’t go to any more of them. So that’s when I opted for counselling, that’s when I was pregnant.

 

Was that through the NHS? (National Health Service)

 

Yeah

 

Yeah – do you think it helped at all?

 

It did yeah, but unfortunately got cut short because I had my son early…

 

Okay.

 

And we never really followed it through after because obviously with a newborn it is quite difficult to go to counselling.

 

*Nods*

 

Yes.

 

But, with my first born I had suspected mild psychosis, which is what my mum had. Well, she didn’t have mild, she had strong psychosis where she would see blood coming out of the walls. Um, I can talk about that if you want, with psychosis and stuff?

 

*Nods*

 

So… when I was pregnant with my first born, I used to, like see the devil coming out of the ceiling like out of the corner, um… I used to see the number 6 everywhere, and think of the devil, I thought he was after me. I’d be screaming at night telling my partner I could see the devil coming out of the wall. I used to have nightmares. And then when I had my son I was hearing voices where, I could hear voices but I could never make out what they were saying it was like whispering it was like…

 

*Whispering impression*

 

…One time, I heard somebody go, ‘Go on…’  like an old man’s voice but there was nobody there, because I was on the postnatal ward and it was in the middle of the night, but I was so tired and drained it was just normal to me. And then when I got home I could see bears coming out of the walls, and on the way home I could see shadows climbing up trees, and loads of weird things going on. I went back to hospital because of what I could see in the walls… And then it kind of just disappeared, it kind of disappeared after all. But I remember, like, when I used to breastfeed my son, and I’d be looking at his toys and I could see them moving and I though they was alive, so when I used to feed him I used to hide his toys away so I couldn’t see them. I used to hide them behind the cot the teddies because I genuinely thought they were moving! But then that kind of disappeared then, I went to a support group for women with postnatal depression, and I found that really helpful and it all so gave me a bit of structure – that helped. But with my first son I had to be super mum, I had to do everything, I couldn’t sit still. In one day we’d go swimming, library, park… everywhere like, it would be jam packed my schedule, I’d never keep still. Whereas this time around I’m a little bit more relaxed but then I’m thinking am I a bad mum because I’m not being super woman, I’m not doing this and doing that, you know? Um… but I’ve not had any signs of psychosis this time around. But, the hospital was quite rude though with my second son, because I got told because I had mild psychosis with my first, then I had to see a psychiatrist in order to get discharged?

 

Okay.

 

So… about 7 days after having him, I said, ‘Can I see the psychiatrist now?’  So when it comes to me leaving the hospital, I can just leave, instead of waiting around to see the psychiatrist. The psychiatrist came in… And he was asking me all these questions – which they have to do – do you think you have got super powers? Do you think everyone’s after you? And I was like, ‘No, I’m fine, I’m absolutely fine there’s nothing wrong with me, I feel so much better than I did when I had my first…’

 

Yeah.

 

And then they was like, ‘Well I think you should get supervised whilst you look after your baby for the next few weeks, can you agree to that?’ and I was like, ‘No!’ I was like, ‘There’s no way I’m getting supervised, there’s nowt wrong with my parenting, I’m not giving you any answers that would make you feel that way?’

 

Yeah…

 

I requested this psychiatric assessment because it’s what I need to get discharged, and I didn’t want to be fannying about! Because I’m in hospital for so long, I want to get discharged, I don’t want to be waiting around, I wanted this to be over and done with, and I found it quite…. Infuriating. Because I’d had it the first time around that they had assumed… Do you know what I mean? It wasn’t like that at all.

 

What did they say to that then, when you put your foot down and said No?

 

He just said – ‘Okay then!’ – he didn’t say anything. But he was a student psychiatrist and I think he was just covering his own back.

 

Yeah maybe, maybe… Did you have any signs of psychosis or paranoia, or anything like that when you was younger?

 

Paranoia, yeah. Psychosis, no.

 

*Laughs*

 

I was always frightened of ghosts and stuff. But no not really…

 

*Silence*

 

A lot of my memory is blanked out. I don’t have a lot of happy memories. I do of my nan and grandad. I don’t really remember a lot. I remember one time when we was sat on the floor next to our house and we was chatting a lot, and that was really nice? But my mum could turn really quick, and I always remember being really disappointed where one minute she’s be really happy, and the next minute she’ll take it out on me. You’d feel lifted and nice and comforted, and the next minute… You were back down to the bottom again…

 

*Silence*

 

Um… yeah… I don’t have a lot of memories of my childhood to be honest, I have a lot of stuff from what had happened but the happy memories, I don’t have many of them.

 

Do you feel like you missed out on a childhood?

 

Yeah. Because I don’t have a dad. Haven’t got a dad that has bothered with me as they say, and my mum’s not particularly the best mum you could ever have…so yeah I do feel like… I wish that I had a family where, like my partners mum and dad; where they come and help with DIY and you can go round for your dinner and you can raid the fridge without being judged or… and I had a mum where I went shopping with her and drank champagne. Maybe those things don’t happen, and maybe that’s not reality and that’s just created in my head because that’s what I want? And I see it in films and stuff maybe that’s not what family life is really like and that’s what I have created and it’s not really real. But that’s what I’d like – a mum and dad – with no mental health issues and that cared about me and loved me and took me shopping, did the normal things that mother and daughters do, and a dad that cares about you and judges all your boyfriends and… Instead… Instead of having emptiness. It is, it’s just like a childhood of emptiness, I don’t remember anything… Apart from the bad things…

 

*Silence*

 

You seem quite close to your partner’s mum and dad, do you see them as a family?

 

I know they are family because they are my children grandparents, but I don’t feel like… I get on with them but I don’t feel like I am part of them, I don’t feel like I a worthy of being part of their family. I just feel like, it’s me, my partner, my children and my nan. I feel quite lonely. I feel like my children family, it’s all about my partner’s side, because I haven’t really got anybody. That’s how I feel. I feel like I’m quite lonely, like I feel like I’m not really part of my son’s life.

 

Okay.

 

Because I feel like, I’m here. That’s their family… And my nans over there? I don’t feel like really… yeah. Yeah, I don’t know.

 

*Silence*

 

Do you feel like… I know your mum came back in to your life quite recently and you tired making a go of it, and that didn’t work out. Do you feel like you was stronger to handle the situation this time?

 

I was a lot stronger this time than how I was when I was pregnant with my first born… I was a lot more accepting of it because I’d already been through it. But, I still get feelings of guilt that maybe it’s me who’s in the wrong? And being that person where you have always been put down… My mum is like, it’s like role reversal where I’m her mum and I have to look after her needs and her feelings, and it’s still like that now, I think that’s why I get the guilt. Because, she is narcissistic, she has got the symptoms of narcissistic personality disorder, she’s like that. Even now I’m thinking, ‘Oh I feel guilty on her, how is she feeling? How is she coping? I am being the bad person because I’m putting her through this?’ But, then I’ve also got to think I’m doing it for myself as well, and I’ve got to be in a good place to look after my children. And when I was friendly with her, she did nothing to make her horrible when we were friends, obviously the telephone calls she went a bit insane, but the times we saw each other she was okay. But there was always that doubt in myself thinking she’s not doing to stay like this, this is all an act. And she proved me exactly right when we fell out. Because of the social services things, and, ‘I’m going to take your kids on a Saturday,’ and, ‘It’s going to be on my terms,’ and I thought well you have not changed and I know I did the right thing my cutting her out again.

 

Yes.

 

But it does mean I don’t feel guilty and that show I feel, but she doesn’t worry about how I feel because it’s all about her.

 

I know that you had quite a bad time with it again, but do you feel like you did the right thing by trying to give her a second chance?

 

Yeah I’m glad I did because if I didn’t I would always wonder what if? but I’ve done it, I have extended the branch, and it didn’t work out so. That’s the last time I ever do it because I don’t have any feeling of what if anymore. I know what it leads to… it leads to me feeling anxious, me feeling nervous, me worrying, me being paranoid – even if she doesn’t give me any reason to be paranoid. And then, it’s just not worth it, like I wasn’t sleeping, I was overthinking. Do you know? Whereas now I feel a lot better.

 

Yes.

 

I still feel guilty. I feel like I have pushed herself out on purpose, but she proved me wrong anyway with calling social services on me and my children and stuff. I thought – you’ve not changed.

 

No.

 

You’re still selfish.

 

Do you feel like you have come out stronger from it?

 

I’m back in the place where I was when it was me, my son and my partner, where it was just us and I didn’t have to think about her. But I feel like I think about her a bit more now because she has met my son and I’ve put her in that situation where I have introduced her to my son and then I’ve taken it away? But I took it away – not in spite –  but for my own sanity, because I’m worrying so much, and also when she used to be with him I used to think, ‘You don’t deserve this, you don’t deserve this happiness to be with my son, you are not worthy of being with my son, because you are so cruel.’ She’s been so cruel to me yet I’m letting her see my son? And I used to resent her and think why am I doing this? I’m not doing it for me, I’m doing it for her, I’m not doing it for me, I’m not doing it for my son, I’m doing it for her, and it’s the whole role reversal thing again of looking after her needs.

 

Yeah, I think there’s bit of a whole role reversal with your worth as well, I mean you grew up in that situation thinking that you wasn’t worthy, and now it’s she’s the one that’s not worthy?

 

Yeah. Kind of, um… but on the same token, I’m still looking after her needs by feeling guilty, you know?

 

Yeah, yeah.

 

I won’t… but then, I am more worthy than that so…

 

I think that’s what makes you human though? Like, we’re empathetic creatures aren’t we –

 

– Some of us.

 

Some of us…

 

*Silence*

 

I just… I’ll close my eyes and think of her when I was a child, and I’ll just see these evil eyes, looking through my nan’s window, shouting and swearing, and saying, ‘let me in’ or saying ‘You’re killing your nan and your grandad, they don’t want you here..’ And she didn’t want me because obviously her husband would beat me up. He’d bust my lip open. He tired breaking my nose, but my nose it like… malleable…

 

*laughs and squeezes tip of nose*

 

*silence*

 

Um… I forgot what I was saying now. What was I saying? Yeah, so she didn’t want me and my grandad took me in and she hated that, because it made her feel jealous, so in turn shed make me feel like they didn’t want me, that I was killing them, she actually said -‘You’re killing them being here!’ and… she just made me feel like I wasn’t worthy of anybody, of anybody loving me, of anybody taking care of me… You know if they ever brought me some clothes – even though I was living with them and she didn’t buy me any – she’d go sick, she’d hate it! And I used to think… why? You know, why am I not allowed a holiday, why am I not allowed clothes, why am I not allowed to be loved? And it did make me… because I know I look back on my school days, there was a time where someone would wind me up and I’d just go over to them and punch them in the stomach *laughs awkwardly*. Like, that I’d be so angry and I’d just go over and punch them… Like… I think if I ever worked in a school – which is something I do want to do – if anybody ever came to me and said, ‘I’m having problems at home’, even if it was something so daft I would sit down and I would listen to them, and I would acknowledge them and make them feel acknowledged, I wouldn’t turn them away because, schools hard enough as it is without having problems at home as well.

 

*Nods*

 

Yes, I agree.

 

And when you seek that help of someone who’s in an authority position, where they are in a position where they can help you, then they should stop listen, actually listen to what they are going to say, because you never know what that child is going to say or what they are going through. You can look at somebody, they can be well dressed, well groomed, going on holidays all the time, they can be the most happiest person in public – but if they come to you are say they are having problems you need to listen to them. You don’t just turn them away.

 

Do you think with the situation that you went through, it would make you be more aware of it with your children? You know, say if they are going through tough times at school?

 

Yeah I wouldn’t… I wouldn’t want to see any child, regardless of it they are mine or not, I wouldn’t want to see any child going through any problems because it would really, you know… strike a chord with me, I wouldn’t like it. But it would make me feel more desperate for my children to be happy though, because it would make me feel guilty if they were so down? It would make me feel horrible. But my children will never experience anything from me or from their dad, you know… I don’t know really? I want my children to be more open with me and willing to discuss anything with me, without feeling judged. Where they can have ten minutes where they can shout and swear, and punch things and after ten minutes… *holds hand up* ‘right… Calm down now,’ do you know where they have got that time to be able speak about their emotions, you have ten minutes where you can shout and swear, you’re not going to get in trouble, just get it all out… You know, where they can just come to me and feel open and relaxed, to say – ‘Look mum I’m having problems’, and that’s something I wished I’d always had. My nan’s always been there for me, she’s been amazing, but there is going to come a time when my nan isn’t there anymore, and like I said before my partner and my sons are there and I’m literally on my own then I don’t have any branches off to anyone else really, you know what I mean? And I think there is going to be a time, when that time comes I’m going to feel incredibly lonely.

 

*chokes up*

 

But then I’ve got to think that I’ve got two beautiful children now, and I don’t have to dwell on the past and that I’m not really on my own because I have these two beautiful babies and I can look after their emotions and help them to grow up to be strong people where they do feel wary that everyone is here, but they’re up there, and they are not on the same level they are up here…

 

*raises hand*

 

You know? I want that for my children, I want everything that they didn’t have, where if they… You know… If they… where I can get them the shoes that they want so they fit in at school, where they can talk to me if they need to talk to me, where they can feel open to talk to me where they can get a cuddle from me or they feel comfortable to give me a hug because that’s what they want. Where they are not nervous to give they mum a hug because it’s not a natural thing, I want it to be natural where we give each other a hug and you know, where they speak to me and know that… Their worthiness is up here, so they can do well in life and they have the confidence to go forward, instead of thinking, ‘Oh everyone thinks I’m down here, you know…’

 

Yes. Well…they are two very lucky boys!

 

*Laughs*

 

They are very lucky. So what would you want to say to somebody who read your story and was going through the same thing, what would you say to them?

 

Acknowledge it. Acknowledge that it is wrong. Speak out, don’t feel guilty for speaking out on that parent because that parent is not thinking about your emotions or your health or your happiness, they are not thinking about your happiness. Speak out and do something, and if the first person doesn’t listen to you don’t give up. Don’t just put up with it, and acknowledge that it is wrong, ask yourself would you do that to your child? And if it’s no, then it’s not right.”

 

 

 

The NSPCC (National Society for the Prevention of Cruelty to Children) is a registered UK charity that provides 24/7 support and information for children who are victims of abuse, and support for families. For more information about the NSPCC, research, and their services please follow the link to their website below:

Web: nspcc.org.uk

The NSPCC also provide support helplines for adults concerned about a child;
Tel: 0808 800 5000

For help for children and young people, the Childline website, provided by the NSPCC, is a great resource for information, advice and 24 hour support.

Web: childline.org.uk

Tel: 0800 1111

 

 

The blog is looking for people to take part in telling their story. To take part in The Conversations, please drop me an email on themanicyears@gmail.com.

Megan x

“Sharing Stories” – A battle of postnatal depression, by Emma Burns.

“I have suffered with my mental health since I was young, and diagnosed at the age of 12. My mum had been a heavy drinker since I was 3 and I’d been in and out of foster care on several occurrences by the time I’d actually been diagnosed with depression and anxiety. In the years before this, at primary school, I had just been called “soft” and picked on because I cried all the time or overreacted to the smallest of things and then just I’d sit there in silence just thinking.

Fast forward to when I was diagnosed. I was in year 7 at high school and not living at home with my mum because yet again she had fallen off the wagon and become physically abusive towards me. I was given counselling again from a child counsellor I had seen a few years earlier. She was great, I could let of steam, scream and shout all while being allowed to be the child I hadn’t ever been. By the time I was 14 I had been back home and back in care several times, again my mum was physically abusive towards me on several occasions. I felt like a yo-yo, back and forth, up and down. In school I was a loner, I didn’t have many friends; there was a few that were aware of things and supported me, an in addition of having a mentor. I was the one that people made jokes about; I was different, I didn’t live at home with my mum, other people didn’t really understand my situation and they’d make fun out of the fact that my mum was an alcoholic. I felt isolated, like no one liked me or wanted me around. I began to feel nervous about being around people, although generally I appeared to be this bubbly person who was always happy (I was good at putting on a mask) – no one saw how things had actually affected me over the years, they didn’t understand either as most of them couldn’t relate, only those really close to me knew what was going on. I continued through school bobbing in and out of depressive and anxious bouts, controlling it fairly well from 15 when I had a stable foster placement where I was treated well.

When I was 16 I fell pregnant, I wasn’t with the dad… ‘Oh s**t, what am I going to do?’ I thought about all my options and after a few days of knowing I was pregnant I was madly in love with this little blob inside me, I moved back home to my mum and everything was great throughout my pregnancy, my mum had stopped drinking and was being supportive and we were getting on great. My little girl was born in autumn 2007. I was 17 years old, I had this tiny being in front of me needing me, completely relying on me ‘I can and will do this she needs me’… I wanted to be the best mum I could and prove everyone wrong about ‘teenage mums’; I breastfed her so I knew she was getting the best I could give her, all her things were new, she was always immaculate, I wanted to be the best that I could… After 3 weeks of horrific pain and a baby stuck to me permanently I gave up breastfeeding, I’ve never felt so bad in my life and that is where it all began again.

I felt bad, I felt guilty, like I had let her down… I hadn’t – I had done my best – but it didn’t feel like that at the time. I went to see my doctor straight away this time as I didn’t want anything to effect the way I looked after my little girl, I was prescribed fluoxetine, an anti-depressant. Diagnosed with postnatal depression and pretty much just sent on my way, I was taking the medication for a few weeks and I felt worse, they actually made me feel like I wanted to do myself harm, and after another two weeks I came off them because the side effects were horrendous and made me feel worse physically and mentally. After a few months of battling by myself, using the strategies I had learnt through the years; once again I was ‘okay’. I continued to be okay for a good while afterwards too, and when my little girl was about 10 months I met someone; we had known each other a while, he was older than me and my mum disagreed… He made me feel special, I felt lovable for the first time in my life and I felt like everything I had been through was worth it for this. I finally felt accepted and it was amazing.

Shortly after getting together, to everyone’s surprise and a few people’s horror we moved in together and quite soon after that I fell pregnant again. We were on cloud 9… Unfortunately after 3 weeks of knowing I was pregnant I had a miscarriage (I was bitten by a stray cat which caused septicaemia and led to a miscarriage). We were heartbroken and again it made me feel bad as it was my job to protect this little life and I had failed to do that, I know it wasn’t really my fault but at the time I felt like it was. After the miscarriage we moved in with my partners parents to save up for a bigger house and a few months later I found out I was pregnant again. This time we told very few people, just to save heartache having to tell people if anything had happened. It was a worrying 9 months but in spring 2010 I gave birth to my second daughter (my partners first). We were delighted and everything was perfect, again I breastfed but this time with the notion of stopping when I needed too with out feeling guilty about it because I had done the best I could do. Roughly 10 days after our daughter was born I received a phone call that would haunt me for years to come.

My Nan, my rock, the most inspirational woman I had ever had in in life had lung cancer and had been given a maximum of 6 weeks to live. Due to the severity of the cancer and her age there was nothing they could do for her. Five short weeks later, she passed away in hospital surrounded by all of us. The next few weeks and months would be the hardest I had ever faced in my life, in the first few days after her death I just cried. I have never actually felt as broken as I did right then and I had been in some pretty low places over the years. I had to try and pull myself together for sake of my partner and my girls – I couldn’t carry on like this, just basically functioning and doing what I HAD to do. About 6 months after my Nan passed away we moved house again, a fresh start, or so I thought. I fought with my Nan’s passing for a fair few years, but I never dealt with it I accepted it, I ran on autopilot, forgetting important things, leaving the housework and just generally not being myself; I ended up going to the GP because I needed help to deal with my grief. It had been 3 years, I didn’t want medication this time though but my doctor strongly advised it, I was prescribed citalopram and was referred for counselling which actually helped. I faced a lot of demons in those sessions, dealt with why I couldn’t let go and why her death had destroyed me like it had done. A lot of it boiled down to anger stemming from childhood, my Nan was always there for me.

After the counselling I felt great, I weaned myself off my medication with my doctors guidance, I even went back to college to get some qualifications. Once I left college I applied for every care job in my area and within a few months I got an interview, a week later I got the job. I loved it, I’d always wanted to work in the healthcare sector and the aim was to start at the bottom and work my way up. I’d been there almost a year when I again fell pregnant, we were over the moon as we’d been trying trying for quite a while. During the early weeks of pregnancy, work was fine, but due to the complex needs of the people I was caring for and the fact we were extremely short staffed that soon changed. I began getting agitated and upset in the mornings before I went to work and I would dread every shift, yet I loved what I did, by the time I was 15 weeks pregnant I had thought about handing my notice in for the sake of my mental health several times; I was taking my work home with me, which is never good in my line of work.

I worked until I was 19 weeks pregnant when I finally bit the bullet and handed my notice in. I thought it was for the best but in hindsight it wasn’t, although it was stressful it gave me a distraction from my own mind. For 12 hours I was this big ball of fun, the joker, I got on with my colleagues and had fun whilst working. Ironic really considering what was really going on in my head! The rest of my pregnancy went well and I gave birth to the most beautiful baby boy I have ever laid eyes on. From the minute he was born, I worried. I wasn’t depressed, just anxious. Like the girls, I breastfed him and to my absolute amazement, I managed just over 6 months, I ate well, I slept so well (our son slept through from day one) and I was generally happy. When I stopped feeding him myself, I expected to feel guilty like I had done before this time I didn’t, I was fine, it was amazing! I finally felt like life was going my way…

Shortly after this my mum was on one of her usual drinking binges and was unhappy because I wouldn’t let her see the children; we’d had an on-off relationship for the previous 8 years due to her inappropriate behaviour and drinking which led to me me stopping her from having contact with them. She did the unthinkable and tried to have my children taken off me, luckily everyone saw through her lies and the children are still where they should be, at home with mummy and daddy… This again raised that horrible darkness that I hated so much! It made me question myself, ‘what have I done to deserve this?’ How can someone that is supposed to love me do this?’ 

Now almost 7 months later I’ve been lower than I’ve ever been in my life, until recently when I realised I can’t keep myself down there, I don’t want treating with medication so I have to make myself feel good! I have done it before…  I need to be proud of myself and what I have been through! I need to realise that I have everything in the world to be happy about and that is my little family.

I will get there eventually, I have support from good friends and family. In a way I’m glad of the life I’ve had, and made me who I am and I will find that person again. For now I will keep going; Life is precious.”

– By Emma Burns.

 

Stories are still needed!

Do you have a mental health/recovery story of your own that you’d like to reach out and share to others? Whether it be overcoming depression to addiction to eating disorders… no matter what your area, there will be a chance that your experience will touch someone elses life.

Send your story with your name to themanicyears@gmail.com and i’d be happy to publish on The Manic Years.

Sharing saves lives –

M x

When mental illness gets the best of you, we remind ourselves of who we are.

 

17431675_10155182127718885_1044870403_o

 

The solid floor, cold against my tear stained cheek was my body’s point of reference to centre myself. I open my eyes and allow them to explore the tiny flecks of iridescent colours shimmering upon it’s textured surface. I feel my chest beginning to expand again and finally I can breathe. I pull myself up, slowly, and grab a towel to dab the wet under my eyes, carefully cleaning the mascara and making myself look presentable. Then I take one last deep breath and go back in.

I enter, and go back to the task I had abandoned. I try and concentrate – I’m merely transcribing from one place to the other, but I can feel the exhaustion pulling me under from my brain working on overdrive. I’m so tired.

It’s a funny thing mental health. Our tiredness is not the same as the socially accepted common occurrence that every single person goes through on a daily basis. Our tiredness, is the exhaustion that makes every cell in our body scream defeat. It’s being overwhelmed by taking in the colours and the sights and the sounds and the smells of our environment. It’s not being able to reply to a text message and socialise. It’s spending days fabreezing our dirty clothes in the wonderment of how many days we can go trying and failing to convince ourselves to take a shower. When we say we are tired. We don’t mean we are tired. It means we cannot go on.

It takes 20 minutes of the most simple task, and I can feel my mind ebbing away again. The million thoughts stumbling in to each other, getting tangled in their meaning and producing one generic output of of white noise. I stutter, and I can feel the heated aggressive energy buzzing in my chest again, clutching its burning hands around my heart and slowly squeezing the life out of me.

Breathe. You have got this.

I close my eyes and take a breath in, my lungs struggling to take in the heavy air. I’m suffocating. My breathing accelerates, my chest getting tighter and tighter.  I’m trying my best to regulate it, but I’m too exhausted. I calmly get up out of my chair and go back to the bathroom. I have to let it pass. It will be over soon. You have got this.

Locking the door behind me, checking it again just in case I am disturbed, I rest my back against the door and let my knees give way, sliding down to the ground. I feel it speeding up now, short whimpering bursts of inhalation, my lungs desperate for oxygen, I am choking. I cover my mouth with my sleeve and give way to it, trying to breathe hard through the fabric in an attempt to achieve some sort of regulation. You have got this.

I have come a long way in my approach towards my panic attacks. There came a time, many moons ago in the abyss of the lost soul, when I didn’t know that I had mental health issues and I punished myself for being different than everyone else. My attacks were more frequent then, and often lead to incomprehensible bouts of rage towards myself – screaming fits, self-harm and any other form of punishment I could find which ultimately made them worse. Today, I felt myself taking a more gentle approach – I allowed my body to release whatever nasty energy it needed to release, soothing myself whilst the waves came. It took some years to befriend myself, and that came with recovery. These days I still to have urges to self harm, once an addict always an addict, but as I ponder through this current panic I find myself thinking ‘Why don’t I?’, and I hear my inner voice in return saying ‘Because you have no desire to punish yourself. Not any more.

This thought was a huge revelation.

My breathing starts to slow and steady after a minute or so. I lower my dizzy self to the floor and feel the cold on my cheek again. I wrap my arms around myself an remind myself that it is okay. I have myself, and I am comforted by the thought. Then when I am ready, I pick myself up off the bathroom floor and return to my desk at work.

I struggle through 5 more panic attacks before I admit defeat and email my manager to tell her I am sorry, but I just can’t be here. I pick up my stuff and run out. The aftermath of that I know I will have to face up to later, but not right now.

Life has been a struggle. My partner left in January, and I have been getting used to life on my own. The guy who I shared my home with, the person who I called the ‘Love of my Life’ is now nothing but an empty space in bed. These days, I drift off to a dreamless sleep besides a ghost of a future that I can no longer hold in the palm of my hand. That road has been closed off. I have to find a new path to walk down now.

The debt letters from what he left us in frequently greet me when I get home late at night from a long exhausting day at work. Another reminder on snooze, that won’t make me forget how much devastation this person who I thought cared about me once upon a time left me in. The 5p’s I now have to regularly scrape up so I can feed myself at night, bills being more of a priority than ever. There is bitterness and anger embedded in me now. This is not me. Hardship changes you as a person, but I have to keep telling myself now to let it change me for the worst. Let it go.

I let it go for a few hours, and then it burns up in me all over again watching my Daughter sob in to my arms when she can’t understand why I won’t let her see him.

Work is heavy at the moment, and sometimes too much for my bones to bare. The 5.30am alarms, the 3 hour car journeys to and fro. The intense workload that I’m fighting and fighting and fighting through. It’s no secret that over the past month I have had to indulge in a sneaky nap on my desk at my lunch break. The effect of my meds on my memory doesn’t help. I walked out of work last week wondering around the street looking for my car, that exhausted that I’d totally forgotten what my car actually looked like. It’s bloody BRIGHT RED for Christ’s sake. I had to flip through the images on my phone to remember what it looked like.

And to top it all off, I am now riding yet another bipolar wave. The increase in my medication has triggered an unwanted physiological response in me that I cannot contain. Anxiety screams in my face. I got home after my fateful escape from work to my empty home, and after a few tearful ponderings, I realised throughout it all how strong I actually am.

I still fighting to give 110% when my illness only provides me with enough to give 50%.

I am still building upon that relationship with myself, and that makes all the difference.

I am a mother to a beautiful striving girl, and I am still pushing for the both of us.

I am a warrior and I will keep pushing on.

I grab a glass of whiskey, and I smile through the tears. If I didn’t have the ability to laugh at my sorry arse through this, then I’d have no chance of getting through to the other side. I am a wolf, and I will getting running – it’s what I am built to do.

 

to be continued…

 

‘Sharing Stories’ – Our Volatile Years After Bipolar Diagnosis; Raising a teenager with Bipolar, by Kat.

 

img_0751

 

“As I read and learn more and more about bipolar disorder, I realise that my daughter Jessie has been textbook. The volatile behaviour in children with bipolar is extreme and common. Physical violence and verbal abuse is not short lived as it is with ADHD. Whereas rages in ADHD children usually last 30-40 minutes, they can last for hours with bipolar kids.

Jessie was typical in that she experienced the rage and aggression, and rarely the euphoria or elation. Discipline was fought, and she couldn’t deal with disappointment at all. She would fly into violent rages, smashing my things. Foul language and screaming abuse at the top of her lungs became Jessie’s way of communicating. I used to wonder if she’d just become a spoilt brat. Her behaviour was so out of character, and so extreme. In fact, she was actually behaving as kids with bipolar do. And understandably so – kids don’t have the understanding or maturity to cope with emotions bigger than themselves. I was parenting the way I always had, but Jessie stood up to all discipline and raged at any disappointment. Life was incredibly tumultuous in our house, and at that time I felt like I was between a rock and a hard place. Any parts of me left exposed were being squished between other rocks and hard places!

The abuse and destruction were what I found the hardest to cope with. I don’t stay in abusive relationships. But, you can’t leave your child. And she was no more than a child – she was just triggering things in me. Therefore I was hearing her as if I was listening to an adult. I had no control though and there’s nowhere to escape to to get away. Jessie would relentlessly follow me around the house, wherever I went – literally! She’s be in a rage, calling me every name under the sun, throwing things, smashing things and damaging my things. She was a baby the last time she saw her father, but I couldn’t get over their behavioural similarities and ways of thinking.

Being on a first name basis with many of our local police was just how it was for a couple of years. Jessie’s experiences were undoubtedly traumatic for a 10-11 year old. Calling 000 became a necessary safety measure for us both. It came to the point where I’d ask for an ambulance and the police would turn up. Every time. I only just realised why as I’m writing this – maybe only the police can section someone under the Mental Health Act, not paramedics? Police drove Jessie to hospital a couple of times, but due to self harm or talk of suicide, she usually travelled by ambulance. This could happen up to 3 times a week.

On two of those occasions she went against her will – carried out by police with wrists and ankles cuffed with the plastic tie-like cuffs they sometimes use. I’ll never forget it. At 11 she was carried out this way after being put down on the lounge with a knee pinning her head down until she settled enough to cuff her. Jessie was spitting at the officer, trying to bite her, fighting to free herself and swearing at and abusing the officer. The officer tried to get Jessie to settle, but she was out of control. She had got to that point where the brain flips and reason can no longer be seen. It was so distressing, I was in tears. And by the end so was Jessie.

Police applied for an AVO (Apprehended Violence Order) for me against Jessie when she was just 11. She’d chased me with a big knife, but fortunately my bedroom door came between us. It still has 8-10 stab marks in it. Police would arrive to what looked like the aftermath of a cyclone! Jessie had destroyed so many of my things, and the unit was being damaged. With the strength that comes with such rage, Jessie was a danger to herself and to me. We had the Sergeant come a few times to say something had to change. Well no shit Sherlock, but an AVO wasn’t the answer! Thankfully the court agreed. Jessie needed help. Psychiatric care was what she needed, but her aggression and volatility along with her young age made her ineligible for any of the many programs we applied to.

It was such a horrible time, and there was no respite. Our caseworker, Stella, from The Benevolent Society was truly our saving grace. There were times when I said to her that I couldn’t do this anymore. I’d had enough, Jessie needed to go into care where she could have good parents. For so long I seemed to get more wrong than I did right with Jessie. Consequently my confidence in parenting plummeted. I didn’t know this young person. How to deal with her was something that actually felt impossible at times.

Stella would remain calm and talk to me. Not once did she accept my parenting resignation, neither did she ever actually refuse my request for a better home for Jessie. She didn’t need to. She listened, she heard me and acknowledged where I was at and why. During our conversation she would teach me about Jessie’s behaviour, and remind me that I’m a good mum. By the end she would ask me if I still wanted her to make some calls. Of course not! I always felt empowered and determined after these visits where my frame of mind was so defeatist at the start.

I completed the Circle of Security parenting course with Stella. Doing one on one I was able to do that one in a lot of depth, relating it to specific situations I encountered. It’s a BRILLIANT course that every expectant parent would benefit from. It gives parents the opportunity to learn what babies need emotionally to grow into confident, resilient, well balanced people. The principles apply to children of all ages though, and I found it invaluable. It is all about positive, calm engagement and recognising, understanding and attending to children’s emotional needs and behaviours. This is the parents’ manual we all wish we had!! It should be way more widely promoted! Another brilliant course is the Triple P Positive Parenting course for parents of teens. The principles are very similar as Circle of Security, but you learn about the teenage brain and what changes it is going through. Positive communication skills are also taught along with practical example responses.

It’s now been 3 years since I’ve needed to call 000 and home life is very different now. We have other challenges we are currently faced with, but the highly volatile days are in the past. These days Jessie apologises to me if speaks to me in an angry tone, or storms off slamming her bedroom door. She’ll then talk to me about what upset her and why. Our bond is strong and has proven to be enduring which I really love.”

 – By Kat. 

More of Kat’s stories can be found at her blog FamilyFurore, where she shares her personal experiences with raising her teenage daughter who has been diagnosed with Bipolar disorder.

 

Stories are still needed!

Do you have a mental health/recovery story of your own that you’d like to reach out and share to others? Whether it be overcoming depression to addiction to eating disorders… no matter what your area, there will be a chance that your experience will touch someone elses life.

Send your story with your name to themanicyears@gmail.com and i’d be happy to publish on The Manic Years.

Sharing saves lives –

M x

Clouds.

clouds

It is January 2017, and the new year has delivered a depression.

I woke up one morning, and my life was full of clouds. Have you ever felt the air around you grow dense, so much that it’s notibly weighty when you breath it in, almost like you was inhaling a thick glug of syrup, the feeling you get when trying to suck a milkshake through a straw? Every breath I felt today, felt just like that. My heart was bursting with it.

I looked around at my life and everything in it was covered with a sheet of that heavy air. I had my face pressed up to the tinted glass of the window, the sky and the roads and the people passing by stained by a dull grey hue, and me here trapped inside a box at a distance with the outside world doing nothing but re-filling my lungs with the same poison I was exhaling out.

It makes me wonder if it is me who is doing this to myself, or this is an actual result of some inexplicable force, something great and mighty way beyond my control and beyond any depths of understanding. We look to the skies and to the universe and we try; we try and put some logic on it all by applying the physics of what we have found, a solid mathematical calculation of why the earth rotates; why there is life here, how vast space is, the stretch and the folds of time. We are curious creatures but we have those needs, the need to apply logic to absolutely everything, the need for unshakable evidence and truth, but do not and cannot fully understand the universe and it’s infinite space, no? Maybe there is no logic behind it, there are no terms or rules we can apply to it. Have we ever thought that maybe it is just something that is not made to be understood, that in the end, that the term ‘understanding’ is purely a human creation, and that understanding for some thing which simply does not exist?

The feeling I wake up with, and which walks beside me in my life is exactly this. Maybe there is no reasoning and this is why I struggle with it so much, because we are all creatures who were made to seek out meaning.

I fear the clouds. It forces me to question everything about their presence and mine. How can I possibly be so frightened of something that I cannot physically hold in my hand? My head is straight, I know that my life exists beyond them. My life has not disappeared, I am certain of that. Happiness is beyond the clouds, and life is possible but I cannot shift them, because they have no where to go. The clouds are a burden, they are here and they block my view. Yet if I reach out to them and grasp at the clouds, I cannot contain them. You see, I have these people in my life, my friends, family, doctors who ask me to explain how I feel, and ask me why this feeling overcomes me and casts it’s shadow over my life. I can try my hardest to grab at these clouds and give them to the people in my life. The clouds that represent the sole purpose of it’s existence. But we all know what happens when you open your hands after trying to grab at a cloud don’t we? It finds me stuck here, with no understanding, trying desperately to cling on to reasoning of an entity that cannot be reasoned with.

You cannot explain that to someone when you cannot even explain it to yourself. So I am stuck here with them, floating by. I find myself stuck in time, in this never ending cycle that holds me down in my life.

They say we should learn to accept the things we cannot change, the forces in our lives that we have no control over. I cannot change the fact I have this illness, but it does not mean that this is not hard.

 

It is so hard.

 

 

 

 

‘Sharing Stories’ – The use of medical marijuana in Marfan Syndrome, by Tony.

 

“I am a 27 year old man, I have depression and suffer greatly from chronic pain. Over the past couple of months my health has deteriorated massively, I can no longer walk far or for long, my arms and legs ache daily and suffer from shooting and stabbing pains in my back (from scoliosis) and the unrelenting urge to have to use the bathroom to satisfy my Irritable Bowel Syndrome.

I am a Teacher; my work is very physically demanding and that is without the mental demand needed to provide quality teaching sessions.

It is now Wednesday and I have not been able to make it into work this week. My Doctors took me off all my pain, my anti-inflammatory and my depression medication and this week so far has been sheer hell – the feeling of being trapped by the limits of your own body is terrifying.

What would you think of me if I told you I smoked medical marijuana? Would you think I was unsuitable to teach your children? Would you demand I lost my position as a teacher because of the misconception of an ancient medicine?

My first encounter with cannabis was a positive one. I was around 17 years old at a house party and some friends of a friend were smoking weed. I had always thought of drugs (especially from what i’ve seen in the media) as something to stay away from. The night I tried cannabis for the first time was a long time before my pain progressed, but little did I know that that night I was medicating myself; I felt happy, the worries melted away and I felt confident. That night I kissed a girl I had my eye on for a while (it was also her house party)… needless to say my first experience was a positive one.

It’s hard to say how much smoking cannabis is improving my quality of life right now. Off the pain meds – the pharmaceutical drugs – I find myself more at peace with this chronic stabbing pain I feel as I write this. My muscles are less tense, my mind is clearer, I can walk small distances without being in a great deal of pain. It seems to be the only thing thats helping my life at the moment after countless trips to the GP.

I have Marfan Syndrome, a degenerative tissue disorder.

It affects my eyes, spine, heart, skeletal system and all the connective tissue that supports it. My body is constantly in pain – it’s horrible. This illegal medicine is helping me and not getting me high, it helps me to function a relatively normal life with pain, but it’s not available at your GP . It is not available to all the people/children in the UK suffering from one of the many syndromes and diseases that cannabis has proven to benefit; it makes me angry and so sad for the people and children and families that aren’t ‘allowed’ by law to ease their own suffering with a plant – like I said, I used to be against drugs – but let’s talk about drugs, alcohol and tobacco killing *thousands of UK residents every year, comparative of the total number of deaths world wide from smoking cannabis, which is unheard of.

This drug is helping me but I have to keep it secret, the one thing thats helping me and I can’t talk about it for fear of losing my job, my life. It looks like my health is deciding my choices for me these days, how can I deny something that’s helping me? I think you can see at the moment that I don’t have a choice; I’m forced to obtain this medicine from people who grow it. It is not regulated/ tested/ there are no set perimeters that qualifies the usual street skunk as medicinal. I’ve watched documentaries in Colorado where weed has been legalised for medicinal use and I’ve seen dispensaries full of medicine, people treating their many ailments with cannabis, as we did thousands of years ago. These people are getting better, and it gives me hope for the future, when the government puts people before big companies, then we will finally see change. When anybody can grow a plant in their home without fear of prosecution, people may finally be able to take back control over their own lives.

I know that would put my mind and body at ease.

I am a Teacher, a Brother, a Son, a Best friend, I am in pain, I am depressed, I need help. But when nobody can help you, sometimes you need to help yourself and I will never feel selfish again for doing something that positively increases my quality of life.

I’m 27, I have Marfan syndrome, chronic pain, joint dislocation, plantar fascitis and a heart condition; I smoke cannabis everyday. It helps me relax and stop worrying about what the future holds for me.

It takes the edge off the pain, for me that means everything.

It makes me feel a little bit more like how I used to be before this condition starting ripping my life apart.”

 

– By Tony.

 

*In 2014, there were 8,697 alcohol-related deaths registered in the UK, an age-standardised rate of 14.3 deaths per 100,000 population.

* Reports from this year also showed that there were 3,346 registered deaths in England and Wales related to misuse of commonly abused drugs. – ONS, Office for National Statistics (2014).  

 

 

Do you have a mental health/recovery story of your own that you’d like to reach out and share to others? Whether it be overcoming depression to addiction to eating disorders… no matter what your area, there will be a chance that your experience will touch someone else’s life.

Send your story with your name and location to themanicyears@gmail.com, and i’d be happy to publish on The Manic Years.

 

‘Sharing Stories’ – A life with Depression, By Andrew.

“My name is Andrew. I’m 44, married with two lovely kids. I have suffered with depression since my early teens. This is my journey.

The depression came about because of an accident, not to me but to my Father. We jokingly say that he fell off the back off a lorry; actually he was leaning against a support on the back of a wagon when it collapsed, he and a fellow worker fell, and my Dad was left with a fractured skull and an altered personality and has never worked again. I can’t remember exactly how I was told, I think it was by my friend’s Mother and I vaguely remember having to stay with them for a few days.

I do remember walking into the living room when my Dad got out of hospital; I was warned to be gentle as he was quite fragile. He had two black eyes and looked very frail. At the age I was at the time your Dad is Superman! He wasn’t supposed to be like this! I seem to remember vowing that I would have to be the man of the house. I say dad never worked again, he did work for a little while because he had another accident at work when he cut his head open!

As I said, I believed I needed to be the man of the house, a role I was not ready for, although no one else had any expectations of me. There is something else that prayed on my mind at this time. When my Dad was 16 his father died, I was paranoid that history was going to repeat itself especially how ill he was. I remember being very relieved when I turned 17, we had cheated history.

When I left school I went to Art College to do my Btec in fashion. I had been ‘well built’ for most of senior school, I decided I was fat so pretty much stopped eating. I’m not going to say I have anorexia but it was pretty close. I went from a 38” waist to about a 24” at my worst, I collapsed in a bathroom in Paris on a college trip, and I wasn’t well. It got to the point where it hurt more to eat that it did to not eat. I have a picture of me during that time, wearing a baggy jumper to hide my body; I look like I could snap if I bent over.

After college I started working in the fashion industry, probably one of the most stressful environments to work in. I lasted about 15 years with various episodes of the dog but I still didn’t know what it was, I had talked about suicide with my then girlfriend (now wife) but I thought that was normal! Eventually the first glimpse into what was actually happening to me came about. We were told the company I was working for wanted us all to move to Leicester as that was closer to head office, this was never an option for me as my wife worked here and we had just had a baby and moved to a new house we loved. Of course the alternative was redundancy. I became ill, I would sleep up to 22 hours a day, I became dehydrated as I couldn’t stay awake long enough to drink. I kept going back to the doctors who kept sending me for tests, diabetes, thyroid, all sorts. I asked if it could be stress related. He then asked if I was stressed. I explained that I was being made redundant; we had just had a baby and moved into a house that was about twice the mortgage of our previous home (in our previous house we had been broken into 4 times over 2 years including twice in one week). After three months on the sick the doctor decided I was ill because I was overweight!

After I left the fashion industry I started a business making clothes and soft furnishings, my wife went back to work full time. I also started a part time degree in textiles, this had become a pattern for me; taking too much on so I would fail, this would then prove to me how useless I felt; how much of a failure I was and why I was not worth knowing or loving.

Eventually of course it all came to a head.

My wife had to go to Austria with work and it would be over a weekend, it would have been almost impossible for her to come home so her company paid for me to meet her in Saltsburg. We had a long chat as things had not been great between us for a while, we decided I needed to go and see a different doctor and tell him what was going on. I flew back home and my wife went back to work. I didn’t eat while Nicola was away, I was punishing myself; food felt like the one thing I had control over. I sat one night, kids in bed and took every pill I could find and quite a lot of whiskey, and sat back, feeling calm for the first time in years. This was it, my time to clock out.

Of course it suddenly struck me that it would be my kids that would find me, I was a horrible person but I couldn’t do that to them! I took myself to the toilet and made myself throw up until I had nothing left then stayed up all night in case I fell asleep and didn’t wake up. It’s funny but shortly after this we had a party for my daughter’s birthday and lots of people commented on how well I looked! I had shaved my head as my hair was falling out; I had a hunted look in my eyes.

We went to the doctors and told him how I felt; he asked Nicola if I ever hit her or the kids. I was horrified at the time but I can see he was asking all the right questions. My life was in freefall and I had absolutely no control. I was prescribed anti-depressants and sent home and told to wait for the crisis team. They arrived at our house not long after us, two ladies, one went and spoke to Nicola and the other sat and let me talk. They visited a couple of times until I was relatively stable. I’m not sure if it was a complete nervous breakdown but it’s as close as I ever want to be!

The doctor recommended MIND to me, they were great and dug into what was causing the depression as well as giving me coping strategies. The first time I went there I felt like the world was in colour and not the black and white I had seen it for years. I went on to see MIND several times after that as the depression would find its way back.

I finally felt strong enough to ask the doctor if I could have some counselling which he arranged. I remember sitting in the waiting room with Nicola; everyone had various nervous twitches, no one would give eye contact; and when you caught a glimpse of their eyes it was terrifying, I wondered what they saw when they looked at me for sure I had the same.

I felt terrible about the amount of medication I was on, largest dosage of anti-depressants plus another type to help me sleep – all of this just to help me feel ‘normal. I had told my Therapist that this felt like the last chance for me as I couldn’t go on feeling the way I was, I realise how melodramatic that was now but I meant it at the time. I think I realised that this might work and I was ready for it too when the therapist asked what I wanted, previously when asked I would say that I just wanted to be like everyone else, this time I said I just wanted to be comfortable being me! I can see now what a huge shift that statement was.

I had a full course of CBT which I feel gave me the tools finally to get to grips with my issues.

I’d like to say that that is the end of my journey, I had hit rock bottom and over the course of about 7 years I had crawled my way out of it, from near death and self harm to loving life. Growing up I could never see myself growing old, I was sure I would be dead by 37! I started to become ill again a few years ago and after a lot of tests I was told I had Ankylosing Spondalitis (a form of arthritis that affects any joints) but the medication was often worse than the illness. Earlier this year my diagnosis was changed to Fibromyalgia which can apparently be brought on by depression. I have been unable to work since my latest flare up in January, at the time of writing this it’s the end of July.

For people who don’t know what Fibromyalgia is, it’s basically constant pain, all over. I can’t walk far; I have no upper body strength any more, can’t lift, can’t even put my arms above my head without pain. So of course the depression is back. I’m waiting to be referred for more counselling as I type but I at least know what is happening this time so I feel better placed to cope.”

-By Andrew.

 

 

Stories are still needed!

Do you have a mental health/recovery story of your own that you’d like to reach out and share to others? Whether it be overcoming depression to addiction to eating disorders… no matter what your area, there will be a chance that your experience will touch someone elses life.

Send your story with your name to themanicyears@gmail.com and i’d be happy to publish on the Blog.

Sharing saves lives –

M x

Want to write for the blog? We need your stories!

quote-on-stigma-health-56-healthyplace
For the past few months people have been submitting in their experiences of mental health from a wide range of disorders and issues in the Sharing Stories series… stories are still needed!

Do you have a mental health/recovery story of your own that you’d like to reach out and share to others? Whether it be overcoming depression to addiction to eating disorders… no matter what your area, there will be a chance that your experience will touch someone elses life.

Send your story with your name and location to themanicyears@gmail.com and i’d be happy to publish on The Manic Years.

Sharing saves lives.